Thursday, August 18, 2011

The Fanciest Garden


From where I’m sitting in the living room I can see Eleanor as she sits at the table, crouched over her breakfast. Her shoulders hunched forward, hiding most of her neck. I can see myself in her glass of apple juice, my reflection just as twisted as her own posture.

I do not fear aging, nor death, for I believe there is nothing on the other side of death to fear. What I do fear though, is my own body; it’s never done anything I wanted it to- never taken the form I work so hard at to get, never developed even the slightest shape of muscle. My skin barely tans anymore, allowing my pale Irish tones to overpower my darker Italian ones. My hair has never once been easily tamed; it’s thick, and, like every other person on either side of my family, I’ll never be bald, but it’s wavy and sometimes wiry, especially in the summer humidity. If this is my body now, what will it be like when I’m Eleanor’s age?

I eat the right foods, take the right vitamins and do the right exercises, I try to keep as healthy as possible, and after living with Eleanor all this time, watching her body prevent her from doing the things she wants, I can only wonder if all the upkeep I’m doing is futile. Will it prevent my body from hunching over? Keep my knee joints strong? Allow me to walk faster than a snails pace? I’ve seen people older than Eleanor in better shape, but I’ve never asked them how they lived their lives. Eleanor was very active and always busy in her younger years. Aside from being raised on a farm back in Canada, she maintained an envious garden around her small house. It’s interesting that Eleanor’s pride in her garden is based on the flowers and plants that she keeps out of her garden, while other people admire it for what she lets in.

The upkeep of the garden, as well as the house, is not unlike the upkeep of our own bodies. We get cracks in our foundations, a leak here and there, even unwanted weeds grow in among our more valued stems. No matter how hard we try to maintain these things, nature will always have its way.

Mel and I divide our household responsibilities in respectable ways and doing the upkeep is unrivaled experience in being a homeowner. As we begin the process of preparing both Eleanor and the house for her departure to a nursing home, we start to see the wear and tear she’s tried to hide from everyone else, a mirror to her own mental and physical condition.

Eleanor, like her house, has a leaky pipe. While we replaced the house’s pipe, we haven’t been able to replace hers. She wakes in the middle of the night to pee five or six times in the “potty chair” by her bed, and she pees out far more liquid than she takes in. Despite our best efforts to keep her hydrated, she teeters on the borderline of drying out. She’ll only drink water in parallel with her mood, a mood that does not parallel weather. Rather than an abundance of water during her miserable moods, like dark, grey rainclouds, she detests it, refusing any liquid we offer her. Only when her sun is out are we able to give her the hydration she needs, and as of late, the sun hasn’t been shining very much.

The garden doesn’t do much, other than attract attention and admiring looks from passers-by. Its orange Tiger Lilies are the most noticeable, but their subtle intensity can only be seen when standing right at her much contested property line. The moonflowers sleep during the day and bloom at night, a process Eleanor claimed she once timed at just over three hours. The blues, purples, pinks and yellows are peppered in among the green stems and leaves. And then there are the weeds. Having a vegetable garden of my own, I can successfully identify two or three types of weeds, and anything else that isn’t an herb or vegetable I pull. Eleanor’s garden, on the other hand, is a flower garden, not a vegetable garden, so I am often at a loss of what to pull, though I do water it, some by hand, for an hour every day once the sun goes down.

She once identified a weed to me as Queen Anne’s Lace, a white, flowering weed that looks like a larger version of Baby’s Breath, but also appropriately enough, looks like lace. These weeds have a quiet beauty that can be appreciated, but admittedly, they do look as if they don’t belong in the garden amongst they other flowers, so I pull those as I see them, which is easy as they have white flowers and stand very, very tall. The rest of the weeds however are varying shades of green and because I’m colorblind I can’t differentiate what’s a weed and what is one of the plants that Auntie planted, so Melanie pulls these every Monday morning, the day we have designated for garden upkeep.

Often times Auntie Eleanor will say that her garden is a mess, or a disaster or some other FEMA related tragedy. During our visit to The Good Doctor Gill, Eleanor spent five minutes complaining about the weeds in her garden, saying that no one maintains it. This untrue statement was met with quiet rage by Melanie and she excused herself from the examination room while Auntie was with Doctor Gill. Mel will spend 3 to 4 hours every Monday weeding and trimming the garden under Auntie’s watchful eye as she sits on the porch and when she’s done Auntie will shower her with quick praise on how lovely it looks, even followed by a rare “Thank You” and an even rarer smile. This happens every Monday, and yet, Eleanor tells everyone, including Doctor Gill, that nothing gets done with it. While this brand of criticism goes along with Auntie’s usual attitude of unappreciation, this particular instance really made Mel’s blood boil and rather than argue with her (as we could have argued everything she told Doctor Gill that day [and eventually he saw why]) she left the room.

As we’ve mentioned before, Auntie is convinced that if the garden has weeds, no one will buy the house. Everyone, EVERYONE, she says this to will tell her that it isn’t so and that whomever buys it will probably tear it up for a simpler and easier-maintained lawn. Yet Eleanor rejects this notion because SHE wouldn’t buy a house with an unkempt (despite the fact that it actually isn’t) garden; just another classic example of how Eleanor is incapable of seeing anything from anyone else’s point of view. Most people would target this house as a “starter home” for a young couple, as it couldn’t house anything more than a family of 3 without building up another floor.

I can say, without reservation, that even in it’s initial weed-filled form, her garden is beautiful. The flowers grow wildly and beg to be more of a meadow rather than be contained in a their moat-like beds. It has even inspired me to have a section of my own property dedicated to wildflowers someday. I’m looking forward to being able to just throw various random flower seeds into the fertilized section of soil that I’ll dedicate part of my property to. Last week, there was a breezy, almost perfect summer day, and the gentle wind carried the sweet smell of flowers on it everywhere. I haven’t been exposed to such a strong, natural smell since passing an Orange Grove by the Ocean while visiting my Aunt and Uncle in Tampa, Florida while on a trip back in 2001. 

So we maintain this flower garden as best we can, fighting the weeds each week with the dependability of a celebrity infused sitcom during sweeps week, hoping that one day Eleanor will be able to tell someone that we do “a good job” with it rather than “it’s a mess.” But, as she’s often proven, even if we used hired professionals with more experience performing a certain task than her, she wouldn’t compliment it or consider it a job well done, unless she did it herself- a facet that, since her stroke at least, she has shown that she isn’t able to do well either.

Thursday, August 11, 2011

The Good Doctor


There are people in this world that give us what we want and not what we need, and sometimes, not always, but sometimes, those people, are not good for us; especially when they’re in the medical profession.

Eleanor Brophy has several doctors of varying specialties that she visits; A General Practitioner, A Podiatrist (to cut her toe nails), an Ear Doctor (who cleans her ears of wax using the tiniest, thinnest vacuum possible) a Dentist and a Neurologist, among others. She has visited two Neurologists in the past month and while both are wonderful, only one gave her what she needed even though she didn’t want it, and in the process gave Melanie and I what we both wanted and needed as well.

Strokes alter brain chemistry in mysterious ways; increased memory loss, heightened sensitivity to light, and astonishingly alarming mood swings are all part of nature’s cranial grab bag. It’s the combination of the mood swings and memory loss that hurt both myself and Melanie, as well as Eleanor.

After the first week of returning from rehabilitation in June, Eleanor began to show signs of slight memory loss and a slightly increased temper. These two traits have steadily increased since then, and one sets off the other.

Like all proud and stubborn people, Eleanor has no faults, she is practically perfect in every way, and, like all proud and stubborn people, she is completely wrong about that. Earlier today I had two conversations with her that would have usually resulted in me throwing my arms up and walking away, leaving her to resent me for the rest of the day, but thanks to a new technique I learned from the Good Doctor Jeremy Gill, things took a slightly new and welcome turn; we reached an equal ground at the end of our disagreement. That is not to say that she did not rant and rave and yell what she had to say, but at least, I didn’t.

Eleanor’s General Doctor, who will remain nameless out of respect, is a fairly decent doctor with a great personality. Unfortunately for Eleanor, he is on his way to retiring and simply doesn’t seem to give it his all. This is the same doctor who felt it wasn’t necessary to see Eleanor until over a month after her stroke, and still a month after her second one. This is the same doctor whose arm we had to twist to agree to take a urine test from Eleanor to detect a UTI that everyone (including the visiting nurses) agreed she had every symptom of. When we finally went to visit this doctor only one other person could go with her into the examination room, and as Melanie is Eleanor’s medical proxy, she was the lucky volunteer.

The Doctor asked Eleanor a few questions, took her blood pressure and sent her on her way. Before he left the room, Melanie ask him if he was going to take the urine sample he had said he would when she spoke with him previously on the phone. Before we arrived to see this Doctor we had Eleanor take two urine tests with the visiting nurses to test for this clandestine UTI. Both times the results were reported inconclusive due to contamination. At first we were called by the nurses and told she had tested positive, but the following day were told the results were inaccurate and inconclusive. In response, this Doctor told us he would have Auntie Eleanor take a clean and sterile urine test in his office during her visit.

The urine test never happened. Instead, when Melanie reminded him of it, Eleanor said she did not want it, and he simply said “I don’t think it’s necessary” and left the room sending Eleanor home. So, two inconclusive tests later with a patient who exhibits every sign of having a UTI (which also increases dementia in older people) and this Doctor thought a test that could increase her good health isn’t necessary. Okay. Sure. No problem. Actually, yes, major problem. Aside from the fact that Melanie is Eleanor’s Medical Proxy, it is an absolutely careless assessment of the situation- one that he doesn’t have to live with, one he doesn’t have to suffer the consequences of. How easy it must be to make those decisions regardless of the want or need of others.

Eleanor left the Doctor’s Office getting exactly what she wanted; a pee-pee free experience. Melanie and I left the Doctor’s office feeling absolutely disheartened and definitely feeling that Eleanor’s actual medical needs were not met. This was not the first time a Doctor had given Eleanor what she wanted or didn’t want in our presence but it is the first time it happened since Melanie became Eleanor’s Medical Proxy and Power of Attorney. This Doctor knew those facts, and yet, nothing happened according to our wishes.

There comes a time in all our lives where the decisions we make are no longer in our own best interests. They’re made out of comfort and complacency and feed into the small fears we have, turning them into self-serving monsters, but if we’re smart, we have the foresight to allow the other people in our lives, the ones we trust the most and who are capable of caring for us even when we don’t really care for ourselves to make them for us.

Eleanor chose Melanie to be that person.

Eleanor resents Melanie for being that person.

Three weeks ago we received a letter in the mail from the neurologist that saw Eleanor while she stayed at the Rehabilitation Facility after she was diagnosed as having had a stroke. He wanted to see her for a follow up visit in Worcester, MA, which is over half an hour away. Upon seeing this, Eleanor protested, saying that she has plenty of doctors here in Framingham and can see one of them. She wanted Melanie to call and find out what the appointment was for, and despite the answer cancel it anyway. Melanie called the next day to investigate the appointment and found out it was State Law that this doctor have a follow-up visit with her, so she had to go.

Before going to see this doctor, Mel and I decided to speak with him before he saw her to give him all the information we could, all the information she would deny and never bring up. Melanie made it a point to mention that she would put on the mask of wellbeing for the brief visit and nothing would be done to improve anything, just as she has done in all the previous doctor’s appointments we’ve had. A typical doctor appointment lasts about 15 minutes; after speaking with this doctor and giving him all the information he needed to know about her current condition, he spent almost 2 hours with her.

Doctor Gill knew that she would be able to put on a façade for a short time, but that eventually her true personality and state of being would show through. Sure enough, within 20 minutes, her short temper and general unpleasant disposition emerged, and finally, Melanie and I were validated. The Good Doctor Gill even went so far as to make her angry in general, so he had a sense of what her temper was actually like, and oh yes, he got that sense first hand.

After talking with her about what her life was like now as opposed to what it used to be like, he reminded her that the ONLY reason she is currently living in her home with time to settle her affairs is because Melanie and I had agreed to move in with her and be her caretakers for a time, and that without us doing that, the Rehabilitation Center would have admitted her to a nursing home NOT of her choice without a chance to go home at all. Eleanor acknowledged this, but only on the surface, and did not really let it sink in. She began her usual rant about garden upkeep and how no one would buy the house if the garden wasn’t absolutely perfect and Doctor Gill retorted by pointing out that what matters is the house itself (which Melanie and I have been working on Day and Night) and not the garden- no one would buy a house based on the condition of a garden and any weeds it may have. Auntie Eleanor immediately quipped back saying “no, no one will buy the house if the garden isn’t clean” and she and the doctor engaged in a battle of wits to prove the other wrong. To Auntie, this was an argument, to Doctor Gill, this was one of the tests he wanted to perform on her. She finally ended by saying “Well, I wouldn’t buy it.” And he reminded her saying “The garden makes no difference to the condition of the house itself. You’re the only one who thinks like you, everyone else thinks differently” and she replied by saying “Well I don’t know about that.” Doctor Gill, showing slight signs of aggravation himself, moved on to another topic; the art of letting go.

Every ten minutes or so Doctor Gill took the time to remind Auntie Eleanor that she is in a time of transition; from living on her own to moving into a nursing home, and that she needed to begin letting everything go. He would ask her if something she would complain about was actually “important.” She would reply with a “Yes” a few times before he would calmly (and believe me, this Doctor was calmer than Lake Placidwithout the alligator.) tell her she needed to let go of it because Melanie and I would take care of it.

Eventually he saw that she has trouble letting go of anything and getting her to see that her state of Transition is anything but that. Personally, when I think of Auntie’s inability to let go, I think of an image from one of the short film’s I made. We shot on a vineyard in early November, half of the vines were alive; the other half were dead. In one shot, a very close-up shot, there’s a very green, very living and soft vine wrapped around one of the guiding wires. Just next to it, is a very brown, very dead vine, that is so dormant that it actually had the consistency of tree bark. This vine would never be soft again, it would never untwist or move or bloom, it was going to be this way from here on out, and that is how I see Eleanor.

Eleanor also complained that she hasn’t been sleeping well, which we can attest, she hasn’t. Whether this is due to the amount of times she gets up to pee or her inability to let things go, holding onto the neuroses even in her dreams, is unknown, but Doctor Gill prescribed her an sleep-aid/mood enhancer (an anti-depressant) and then took a urine sample to test for a UTI.

It turns out Doctor Gill also specializes in Geriatric Care, so this type of thing isn’t new to the young doctor. He gave Eleanor her best and sent us on our way.

On the way home, Melanie and I sat in silence, in awe of the experience we just had. He didn’t just help Eleanor, he helped us as well.

Tuesday, August 9, 2011

GPS for Masochists

Auntie has glaucoma in her left eye. When this is brought up in conversation (usually by her) she is quick to add that “it's not a normal glaucoma”. Then she proceeds to tell a lengthy story about being bundled up during chilly October weather, a visitor at the door, and secondhand information from a Canadian nose doctor fifteen years later. The story does not make a huge amount of sense, and is usually met by medical professionals with bewilderment.

Regardless of how it came to be, her vision has been deteriorating steadily in the past few decades and she is no longer capable of seeing out of her left eye at all. Despite this, her driver's license is still valid in the state of Massachusetts and up until the stroke she was still driving around. She was fortunate that her home is less than a five minute drive from a grocery store and pharmacy, and had very little need to travel further. She had routes memorized to all her regular destinations in town. But, as Raz and I would soon realize, all these routes revolved around almost never making any left turns.

I am not great with directions. When it takes some people as little as two trips to a certain destination to have the route memorized, I could still be confused and lost after the fiftieth. My parents bought me a GPS for my 23rd birthday and I use it almost every day. But I had been working in Framingham for almost a whole year before we moved in with Auntie. I can't pretend that I had the whole layout of the town mapped out in my brain, but I was familiar enough with major place and street names to navigate the area without inducing panic. I was confident in my ability to take Auntie anywhere she would need to go without relying too heavily on my beloved GPS.

Our first trip driving Miss Auntie was taking her home from the rehab facility. She was relatively quiet since the route we took was somewhat unfamiliar to her, coupled with the fact that she was thrilled to be returning home after what she undoubtedly considered “too long”. She remained in her house for most of her first week back, as dictated by the visiting nurse service, until she blindsided me by demanding to be taken to an appointment with her hairdresser. At 8 o'clock in the morning. Needless to say, I was super stoked.

Though we had only been with her a short time, I was already concerned with Auntie's memory and thus didn't want to rely on her guidance to locate the hair salon. After a quick google search, I found the place and memorized the route from our home easily – three right turns, and one dreaded left.

Getting her out of the house and into the car takes approximately eight minutes, nine if its too rainy or too sunny.  She has multiple pairs of special, eye insulating, UV ray protecting sun glasses that are so dark that she can’t actually see through them once she has them on, and needs to be guided by looking at my feet as I walk away from her.  Her car is also full of umbrellas, but she claims they are unreliable.  “I don’t trust them,” she’ll say, as she twists her wrinkly sourpuss of a face towards the overcast sky.  “Go to the basement and get one of the umbrellas hanging there.”  I do not understand why she chooses to fill her car with broken umbrellas, rather than throw them out, and to keep all her functional ones hanging in a basement.  But that is a story for another time.

With Auntie in the car, I pulled out of the driveway and made the first right turn onto our street.  So far so good.  “You know where we’re going?” she croaked.  I told her I did, and she seemed temporarily satisfied with that.  A few blocks from her home, we passed her local pharmacy.  “That’s where I get to go to pick up my medicines,” she pointed out.

“I know, I just picked up your new prescriptions yesterday.”

“Oh, did you now?”

I did.  Where did she think her pills had come from?  (Or the receipt for pills that she had reimbursed me, for that matter)  We came to the second right turn, marked by a flower shop.  “Mary Ellen used to get flowers there.” Auntie said as we drove past.  I do not know a Mary Ellen, but I didn’t ask.  That is Auntie’s way - calling people by their first name during a non-sequitor and expecting the listener, not matter how distant an acquaintance, to be on a first name basis with all the people who interest her enough to tell stories about them.

She was just finishing telling me about how the factory on our right that processed metal screws used to be a grocery store (questionable fact), when I got in a ‘left turn only’ lane and prepared to make our one and only left turn.  She sat up straighter in her seat, mid-sentence, and shouted “Careful now, the light is still red!”

“I know, Auntie.  I’m not just going to dart into the street.”

She eyed me suspiciously.  I think she thought I would.  It was a long red light, and she spent most of our wait pointed out that if I just pulled into the next lane over she could show me how to get to her hair dresser’s another way.  A way that I now realize most likely avoided this panic-inducing left turn.  I can understand how driving must be nerve wracking for her, but it was an intersection with minimal traffic and lights to indicate when we had the right of way.  I was not particularly concerned.  When the light finally turned green, I could see her grit her teeth as we looped across two lanes of traffic and over to the rightmost lane to take another final turn straight into the salon parking lot.  There was no need to go around, no need to make our trip longer.  But she was shaken none the less.

She spent just over an hour at the salon, getting the crinkled remains of short grey hairs wrapped into curlers and grousing over the poor selection of magazines she does not read.  I thought that a little beautification might placate her, but no.  As soon as we were back in the car she started her complaints.

In parking lots, it is my habit to drive around, rather than through, lanes of parking spaces - occupied or not.  It is something that I adapted after an unfortunate low-speed accident years ago, little more than a scrape and some annoyances, but I learned that the lines are painted there for a reason and so I follow them.  Auntie probably can’t see the lines, and even if she can she really doesn’t give much of a fuck.  So when I pulled out of our parking space and began traveling up the length of our row, she immediately began to panic once more.  “The way out is over there!” she shouted, pointing a finger across my plane of vision towards the clearly marked exit to our left.

“I can see it, Auntie.  That’s the way we came in.”

“But you’re not pointed at it.”

“I’m following the rules of the road.  We’ll get there.”

“God help us, there are cars coming!”

“Auntie.  I know the way home.  It’s fine.”

She glowered at me and shrank back in her seat.  Yes, there were cars.  Parked.  On the other side of the parking lot.  The shopping plaza we were driving through was generally not a hopping social scene, especially before 9AM.  I pulled around the edge of the lot and took a careful (left, gasp!) turn towards home.  After a few moments of sulking, she picked up the narration of her tour of local landmarks (“That’s the house where Jim’s grandmother lived.  She used to see his grandfather across the way.”), which I should point out that I have heard verbatim every Friday morning since then.

But her road phobias are hardly limited to measly left turns.

The area around our house has been plagued with construction.  Two local bridges are out of commission for the summer, as the town is in a mad dash to bring them up to code before school comes back into session and the buses will need both bridges in their pickup routes.  Traveling through the detours doesn’t bother me on my own, but when Auntie is in the car she prefers that we avoid them altogether.  The construction equipment, I think, makes her nervous.  That, and she hates waiting for what she deems as “no good reason”.

One morning, she had spent the better part of two hours begging both Raz and I (separately, of course, to increase the odds that one of us would crack) to take her to the bank.  She has multiple bank accounts, and struggled to articulate to either one of us which bank she desired a trip to.  I agreed, finally, and began the twenty minute process of loading her up into the car.  

It is important to note that, of her two main banks, one is reached by turning left out of our street and one by turning right.  I had already made the right hand turn before Auntie suddenly realized that she wanted to go to the other bank.  Thinking quickly (and frankly, I’m still a bit surprised that I managed it), I turned onto a side street that I recognized as a route to avoid both the construction and reorient us towards her other bank.  She had never driven down this street, so immediately she went into panic mode.  

“Where are you going?” she barked.  

“If you want to go to the other bank, this is the street I have to take,” I calmly replied.

“But you don’t know where we are!”

“Auntie, just because you don’t know where we are doesn’t mean I don’t know.”

She paused for a moment, then changed tactics to criticizing my immediate driving skills rather than my choice or route.  “You’re too close to that trash can.”  “Another car is coming up behind you, watch out.”  And my personal favorite “Be careful of that bird in the tree over there.”

Instead of answer her, I just took it.  It wasn’t worth it to argue with her, and if she made me mad I was all the more apt to crash the car into that tree - careful of the bird or not.  

We reached the end of the street, which intersected another main road that was prominently marked with both a street sign and a large red right hand arrow with the universal symbol for “no”.  Not only was this street one that I thought she would recognize, as it was a major road a mere block away from the location of her bank, but this particular street was memorable as it bore bother her maiden name and my current last name.  Living down the street from “Hardy Road” for forty years, one would think she had seen it before.

But no, she was still in panic mode.  Despite being a foot away from the “Hardy Road” sign and the “No Right Turn” sign on the passenger side of the car, Auntie had no idea what was going on.  I turned on my left blinker and edged into the street, checking and double checking traffic on both sides of the car (note: nobody was coming, even in the distance, not that it mattered to Auntie).  Auntie gripped the sides of the car in a panic and shouted “What are you doing?!”

“I’m turning left.”

“Well you can’t!”

“Why not.  Nobody is coming.”

“It says ‘No left turn’!”

“That’s a ‘No RIGHT turn’ sign.”

“No it isn’t!  I can see it and you can’t!”

I had no idea how to deal with this.  She had been difficult before, but this is the first time she had flat out denied that information right in front of her face was true.  I could have taken the time to stop the car, get out, point to the sign, and explain the nature of left versus right.  Raz says he would have, had he been in my situation.  But he has more patience than I do, and I just wanted this trip to be over with.  Ignoring her cawing, I turned left and pulled smoothly into the bank parking lot less than a minute later.  

Her trip inside was brief, merely to check her account balance and to add to her collection of those paper tubes you store coins in.  I made sure to take a more ‘appropriate’ route on the way home, but I’m pretty sure she had already forgotten the whole thing.

One day in July, Auntie had asked Raz to take her to the Oreck store to have her vacuum cleaner inspected. There was nothing wrong with the vacuum, but she had a 10 year service plan and had it taken in to be cleaned and serviced (whatever it means to service a vacuum cleaner) every year. Raz knew exactly where he was going and how to get there, but Auntie wanted him to drive the route she knew, convinced he actually did not know how to get to the Oreck store. Not wanting to sit in her cloud of misery, Raz went her way, which was unsurprisingly full of right turns through the back roads of Framingham; adding a needless 20 minutes to their journey. There was a straight route to the store from the house, but that involved a main road and Auntie is not a main road traveler.

As Raz drove through the plaza where the Oreck store was located there was a bit of a traffic jam at one of the parkinglot’s intersection. This intersection also happened to be in perfect line with the parking aisle located directly in front of the plaza. Wanting to avoid this traffic jam, Raz saw an opportunity to go around it and get to an available, close-by parking space just in front of the Oreck store (keep in mind we are still waiting for a handicap placard) so he took the opportunity and went around. He had barely gone two feet before Auntie started SCREAMING at him at the top of her half working lungs “No! You’ve gone too far! You’ve gone too far! Where are you going? It’s over there! You’ve gone too far!”

Raz calmly, but quickly said, “Auntie, those cars in front of us, they were stuck, we’re driving around them to get to the store quicker.”

“Well you’ve gone too far.”

“You’re right, Auntie, I did. Next time I’ll drive into the back of the car in front of me, that should get them to move faster.”

“Yeah, I’d say so.” she replied.

Initially Raz thought she was joking. She wasn’t.

I thought about the way Auntie chooses to “navigate” us through the side streets of our town, longing for the droning guidance of my vaguely British robotic co-pilot.  It made me wonder what it would be like to record Auntie’s voice for a GPS.  Instead of my familiar “in point-two miles, turn right onto Lexington Avenue”, one could be treated to a hazy “that building there used to be a post office, but it burnt down.  Janie’s grandmother used to go there to buy stamps.   Should you turn right back there?”  It could be quite entertaining if you don’t intend to get it where you’re going.  But then I think of the imperative, almost accusatory tone my GPS takes when it announces that its “recalculating” and imagine it replaced with the shrill panic of Auntie’s “God help us, you’ve gone too far!  TOO FAR!”

I’m not sure I could take it.

Tuesday, August 2, 2011

Lather, Rinse...

The snow was still resisting the gentle warmth of early spring when my mother first brought up the idea of bathing Auntie for pay. “She says she'll pay you $20.  She wants a bath,” my mother had said. Not “I want you to give her a bath...” or “It would be nice if you would volunteer to give her a bath...” but a shadowy precursor to the demands I now experience daily. Regardless of your own feelings, Auntie wanted a bath and Auntie gets what she wants.

I hate to sound shallow, but I really did not want to see a naked old lady. That was it. And it wasn't a situation where I could help her into the tub, close the curtain, and be done with it. She wanted somebody to give her a sponge bath while she sat on a plastic chair in the shower. I appreciate her desire to be clean, but I knew that experience would make my eyeballs dirty.

When we moved in, one of the stipulations I placed on our cohabitation with Auntie was that we would not deal with any bathroom activities. No helping her on the toilet, no helping her in the tub, and (should it come up for some reason) I wasn't too keen on helping her brush her teeth either. During our opening interview with the home healthcare service, both Raz and I answered the question of whether we would like a caregiver to bathe her with a resounding “Yes.” In unison.

The “bath ladies”, as Auntie calls them, are all lovely women (and some men, though we haven't met one) with a wide range of personalities, ages, races, and names. Despite Raz and I making a concerted effort to learn the name of each home health aide, Auntie refers to all of them as though they were the same individual with a severe case of multiple personality disorder. Her memory gets noticeably worse every day, but she still has trouble realizing it. Any attempt to draw out information her brain had erased would result in her accusing us of lying, as though we were somehow playing a prank on her by suggesting that any of these women were different. When asked by her case manager to rate her satisfaction with the bath service, getting her to even acknowledge that she had met multiple people was more difficult than getting a complete roster of Auschwitz from a Holocaust denier. These were people, and I can't stress this enough, who had spent time with her while she was naked.

The first morning after Auntie had come home from the rehab facility, Auntie demanded that we give her a bath. I told her that would be impossible, reminding her that the doctors and nurses who had bid her farewell less than twenty four hours prior had deemed it unsafe. She relied heavily on a walker for mobility, and had significant difficulty getting in and out of chairs. And even though she has improved (physically only, mind you) since then, she still does have trouble moving around. Not only were we unprepared for the trauma of seeing Auntie in the nude, but there was the terrifying potential that we might need to physically lift her frail, naked, wrinkly body into the tub. And what if she fell? With the immediate danger of her collapse, who knows what we might accidentally grab. It just wasn't going to happen.

It was our policy at the time to wait outside the bathroom door while Auntie attended to her “business”. We still weren't going to go in with her, but at least we wouldn't be far if she genuinely required help. No more than half an hour had passed since Raz and I declared a kibosh on her bathing when Auntie shuffled into the bathroom. From my post outside I heard the toilet flush, the sink running, and then...nothing. I waited through the silence, wondering what she was up to. After a pause more pregnant that Michelle Duggar, I heard the telltale groan of Auntie saying my name.

She calls me “Mel'nie”, which is odd because dropping the letter 'A' is not a result of her Canadian accent. I would chalk it up to ignorance, but surely in the past twenty-five years she's heard it properly pronounced more than a few times. But I digress.

She sounded distraught when she called me that morning, and so I poked my head around the doorframe to see what the trouble was. I saw a flash of wrinkly pink and realized in horror that she was standing in front of the bathroom sink, naked. Well, almost naked. She grumbled and grunted, struggling with the clasp of her ancient brassiere. I turned away in shock, at which point she called out “Come back here, Mel'nie, I need you to undo my bra for me.”

Resisting the urge to vomit, I begrudgingly turned back into the room and focused my attention on the small patch of skin on her back that had no other discernible “parts”. If I just kept staring at her back, I thought, it greatly reduced the risk of seeing anything else. Quickly I unhooked her bra and darted back towards the bathroom door. I still had one foot out and one foot in when she pressed a washcloth into my escaping hand. It was chilly, damp, scraggly, and altogether unpleasant. “Do my back now,” she demanded. Her tone implied that, were I not to wash her back at that moment, I would deeply regret it. What she failed to realize (and is mostly likely self-absorbed enough to never realize) is that I would deeply regret it if I did wash her back. But I wasn't in the mood to start a fight on the first day, so I did it quickly while sternly informing her that this would be the only time. Our home health aide service was starting soon, which meant that a professional would be there to help her clean herself and that I would never, ever bath her again.

Auntie still insists on bathing herself every day, and for the first week Raz and I were often tricked into washing her back. After I noticed an improvement in her arm mobility, I suggested one morning that she try washing her own back. A brief argument ensued, but I was right. She could wash her own back and we were free.

Although the bath service is fantastic, and has certainly reduced the amount of horrors that we are exposed to regularly, they are only able to come twice a week and often at unusual times. Her first bath appointment was at 3pm. Upon hearing this, Auntie frowned and stated simply “I take my baths at 8:30”. No excuses would be accepted, no explanations of the aide's busy schedule would be taken into account. Bathing so late in the day simply wasn't done. She sulked around the house in dirty clothes, claiming that it was hardly worth it to change if she would just have to take off her clothes again after lunch. When the health aide did arrive, she quipped “Who takes a bath at three in the afternoon? What am I, African?” To this day, I do not understand what she meant by this statement. And with a memory that becomes more sieve-like daily, she doesn't understand what she meant either.

Today a health aide came at 9 in the morning. This is an extremely rare treat, to be the first client on their long list of homes to visit. We had thought Auntie might be glad, but instead she focused her energy on complaining that taking a bath so early in the day would most likely overlap with her physical therapy appointment. She also chose to get up an hour and a half early (despite going to bed late the night before, but that's another story), so by the time her bath rolled around she had already been awake and active for over four hours and thus it was as good as midday – unacceptable.

I went to the grocery store around noon, and when I came home Raz informed me that he hadn't been able to shower yet because Auntie had spent the past hour giving herself a standing sponge bath in front of the sink. When I asked her why she gave herself a bath after her regular bath that morning, she grumbled and gave me a suspicious glare out of her one good eye. She had no idea what I was talking about.

She forgets things all the time, sometimes incredibly important things (again, another story for another time), but baths had always seemed to stick in her mind. People who happened to visit on bath days were usually treated to a full play-by-play of the event, whether they requested it or not (they didn't). But her mind is getting worse. She now forgets events indiscriminately, but remembers old habits obsessively. It's only a matter of time before I find her caught in an endless loop of shuffling into the bathroom, bathing herself, shuffling to her bedroom, dressing herself, and realizing that her clothes don't feel quite right and she should probably take a bath. Again and again. Lather, then rinse, then...


Saturday, July 30, 2011

The Stone in Stone Soup


As the story goes, some travelers come to a village carrying nothing more than an empty cooking pot. Upon their arrival, the villagers are unwilling to share any of their food with the hungry travelers. The travelers fill the pot with water, drop a large stone in it, and place it over a fire in the village square. One of the villagers becomes curious and asks what they are doing. The travelers answer that they are making "stone soup", which tastes wonderful, although it still needs a little bit of garnish to improve the flavor, which they are missing. The villager does not mind parting with just a little bit of carrot to help them out, so it gets added to the soup. Another villager walks by, inquiring about the pot, and the travelers again mention their stone soup, which has not reached its full potential yet. The villager hands them a little bit of seasoning to help them out. More and more villagers walk by, each adding another ingredient. Finally, a delicious and nourishing pot of soup is enjoyed by all.

Like all fables and children’s stories, this one has a lesson; cooperation. The point of this particular story for our purposes, however, is that the stone is a lifeless, unpleasant thing to have in a pot surrounded by fantastic and delicious ingredients and flavors. Eleanor is the stone in Stone Soup.

Eleanor has so many wonderful people in her life, right down to the visiting nurses that come to the house to give provide her with the proper medical care she needs in order to continue sitting around being a stone. She often gets phone calls from very pleasant sounding people, some with Canadian accents, others with jolly Irish accents; she very rarely actually wants to talk to these people. She doesn’t mind visitors, but for no longer than half an hour. Anything over an hour she considers to be “rude.”

A couple of weeks ago, Janie, Eleanor’s niece, came by for a visit bringing her young daughter, age 6, with her. Eleanor had been looking forward to a visit from Janie for weeks since she had returned home from the hospital. During these weeks she would quietly build a small pile of things on the dining room table; a table that she uses for anything but dining. Melanie and I would sometimes use it to play Magic: The Gathering, a card game she has addicted me to, or to eat our own meals once in a while. Whenever we would eat on the dining room table, Auntie Eleanor would exhibit behavior that was a combination of both anger and confusion; she didn’t know why we would ever eat on the dining room table, and she was angry that we would even consider it. Usually we have to move a pile of envelopes, home shopping catalogues and a pile of notepads and post-its. These envelopes and post-its were very important as she uses an entire page to write down a single number that she needs, which she gets from her handwritten phone book, because simply dialing the number from the phonebook itself is just… well it just isn’t done.

During one of these table clearings, we had moved two stuffed animals that she had sitting on one of the chairs. When she walked by the chair and seen it empty, she immediately started to get nervous and accused us of throwing them away. I calmly pointed to their new spot on the couch, which rather than apologize for the accusation, she turned her anger to wanting them on the chair, uncaring of our needs for the chair. So the usual cycle of her impractical wants and our logical contradictions to those wants ensued and ended with us just giving in and putting the damn stuffed rabbits back on the chair. (NOTE: It’s important to remember that she accused us of throwing them out here.)

When Janie finally came to visit, Auntie gave her young daughter the two stuffed rabbits and a pile of other things she just didn’t want anymore, but she also gave Janie pictures of herself and her daughter that Janie had once given her. Sue informed me that, despite the absolute rudeness of this gesture, she does it a lot. In some way, it makes sense; rather than throw these sentiments out, passing them on would be the kindest thing you could do with them, rather than the social contract’s well established rule that we throw these things out without anyone knowing. However, Auntie has been doing this since she’s turned 75.

“What am I going to do with these things?” She rhetorically asks me when I point out how what she’s doing could be perceived as rude. “There’s no point in keeping them.” She adds as she then puts up pictures of people she prefers to look at, most commonly her beloved handyman, who will soon have his own chapter in our story. So when she gives pictures back, what she’s actually saying is “I’m tired of looking at you and I have pictures of other people I’d prefer to see that I need to put up. I need the space.”

Janie stayed for almost 2 hours, well over Auntie Visiting Capacity. AVC, as it’s known. Eleanor never once considered asking her to leave. She could have simply said, “I’m sorry, I’m not feeling well, I need to lay down.” (On second thought, that’s not possible as it contains the phrase “I’m sorry.”) And I’m sure Janie would have ended her visit. During Janie’s visit, Eleanor’s cousin came for an unexpected visit and brought Eleanor a cooked chicken because, well, why not? Who doesn’t want a random cooked chicken? Jerks, that’s who. Half an hour later both Janie and Eleanor’s cousin left. As soon as they drove off, Eleanor turned to look at us with the speed of a scared chinchilla and quipped, “she stayed too long!” She said it in the same way a diver would gasp for air after going for a world record in deep water swimming. She had clearly wanted to say that for a while. “And thank God she took those animals. I was going to throw them out if she didn’t,” as if she was saving the stuffed animals from a horrible fate, like the manager of a pound. “Well it’s a good thing someone adopted those animals before their 10th day here because if they didn’t I was going to put them down.” Bare in mind that this is the same woman who actually enjoys killing chipmunks. We had told her that we would have given the toys away but she kept insisting that they could only be thrown away if Janie’s daughter didn’t want them. (Remember the note I asked you to keep in mind earlier about her accusing us of throwing them out?) This is not the first time her plan to throw something out had interfered with her naturally cultivated desire to keep and horde things.

Auntie wasn’t looking forward to having Janie visit to spend time with her; she was looking forward to a visit from Janie because it meant she could unload some of her crap onto her, pictures included. Eleanor Brophy may not want a lot of things she has, but she’s hardwired not to throw anything out, I know this because I once found a chocolate bar from 1978 in her cabinet and she told me it might still be good when I tried to throw it out. This mentality, it seems, only applies to things that she acquires herself. When she was discharged from the hospital after her stroke, she returned home to a few baskets of flowers and a potted plant; one from her lawyer, one from her nephew Kevin, and a few from other relatives- 5 in total. Two days later she told me to throw them out, as she has no “need” for them and she didn’t like them. She vocally spewed out an acid filled rant about how she doesn’t understand why people give flowers to other people when they’re sick or in recovery; I didn’t dare ask about romantic interests. She also wondered why people would give her flowers; she only has the biggest flower garden in the town and it’s shaped around her house like a protective moat, why would anyone think she might like flowers? There’s simply nothing to base that opinion on, it’s just insane.

If one were to look at this previous example, one would find a very fundamental insight into the way Eleanor Brophy’s mind works. She likes flowers, but has no “need” of them within her own house, only on the outside. And those flowers outside surround the house. So what does this say? She surrounds herself with pleasant things but only wants to look at them from the outside looking in rather than the inside looking out? Are these flowers only superficial? We can’t say she doesn’t care about them because we’re reminded every day how they’re not as good as they could be because she can’t work on the garden herself. Flowers in the house bring joy, they’re something nice to look at and just something nice. I love bringing Melanie flowers and she loves having them around. Auntie, it seems, does not.

But the aesthetic theory isn’t exactly it, as the massive garden is potentially a grand contradiction. Perhaps there is another explanation though; the theory that she’ll only hang on to something based on how much she likes you. Cards and flowers are usually thrown out after a week, although flowers are lucky to make it five days. For her birthday Melanie and I gave her flowers, because she didn’t want anything, but we felt we had to get her something. We spent a good quid on those flowers. Her handyman came by the house sometime later in the day and brought her a smaller, more modest, if not cheaply made, bouquet. A dozen Roses vs. six Carnations. Both were placed on the kitchen table. Every time she would sit at the table she would pull the Handyman’s flowers forward and push ours back. Two days later, she wanted to throw ours out and keep his, even though most of his had died and ours were still flourishing. She really does like her Handyman.

During another visit from Rosemary, her wonderfully fun niece on her late husband Jim’s side, Eleanor had told us that she doesn’t want two small, ceramic flower pots that had been sitting on her front porch.

“I have no use for them.” She said. (Which is incorrect, because she has MANY flowers that could use a home.)

“Do you want me to put them in the attic?” I asked her.

“Well I don’t know.” She said.

“Do you want me to throw them out?” I asked.

“Well, I don’t know.”

“Auntie, you either want these or you don’t. You’re always complaining about how you think we put stuff somewhere and you don’t know where it is, if you don’t decide where you want them, we’re going to put them somewhere, or you can decide to throw them out, which is it?” asked Melanie.

She wasn’t able to make a decision and was seemingly upset when we continued to pressure her into making one. She knew for a fact she didn’t want them, but she didn’t know if she wanted to throw them out or keep them in the attic. If they were in the attic, she’d still have them, a matter of fact that she didn’t agree with. Out of sight, out of mind (sometimes). Eventually I just said, “I’ll just throw them out.” And left the room with both of them. They were nice flowerpots, and good sized ones for most common plants, so rather than toss them in the trash, I put them into her garage. She has had this same internal conflict over more than a dozen things; platters, bowls, vases, plates, etc. and each time she’ll want them gone, then the next day ask where they are.

Rosemary usually visits on Saturdays, a day that Melanie has off, so sometimes we’ll go grocery shopping together while she sits with Auntie. Point in fact, that woman is an absolute joy. Even we look forward to visits from her. Auntie has yet to say that Rosemary has stayed too long at any point, but I know it’s floating around up there in her ancient skull.

I often find myself wondering how someone surrounded by such wonderful people and the means to live life any way she wants to could be so outstandingly miserable. How is it that she continues to have all of these great people visit time and time again, even after she’s rude to them? 

Her view of visitors isn’t just limited to just her visitors, it also encompasses ours. Months before we moved in with her, we had made plans with our friend, Josh, to come visit us for the 4th of July (During which time we would make a short video series called “Sad Tranny.” – YouTube it. Seriously. Do it.) Josh stayed for 3 days. In those 3 days Auntie began to treat him as anything but a guest and not only asked him to do several things for her when we weren’t around but also frequently asked when he planned on leaving.

Last Saturday I went to back to Rhode Island to help a friend shoot a video. During the time I was gone Mel had arranged for her friend Sarah to come by and keep her company. I like to think of this as a preventative measure, as I believe if Mel were to ever spend more than three hours alone with Auntie, one of them would murder the other. Sarah, being as pleasant as sunshine, entered the house, immediately introduced herself to Eleanor and showered her with genuine compliments about the house and the garden. Auntie, who is as susceptible to flattery as Superman is to Kryptonite, couldn’t help but like her. Sarah and Mel spent about 3 hours in our room watching a film and eating lunch. Auntie did not encounter them once and maintained her perch on the porch, keeping an eye out for any trouble or undesirables, at least that’s what I keep telling myself about her interest in sitting on the porch in a manner that deliberately keeps her hidden from those looking in when in actuality she’s an amazingly nosey busybody that would make Gladys Kravitz, and even my mother, turn red.

This attitude of disdain also extends to phone calls. Auntie never picks up the phone. Ever. We have to do it for her. Even before we moved in she barely picked it up. She could never be called upon, but she could call upon you. Melanie has four pets at her parents’ home in North Smithfield, each of whom she had given a personality to. The only female is a feisty Bichon that Mel has personified as an exiled princess who never got the memo of her own banishment. In actuality, I believe that Eleanor fits that description a bit more.

The only phone calls Eleanor looks forward are those from her friends back on Prince Edward Island in Canada, but even those hallowed communications have restrictions; never during Wheel of Fortune (Auntie’s dementia allows for her to refer to this show as “Dateline”). Sometimes, not always, but sometimes, people will call during Wheel of Fortune and Auntie will reluctantly take the call. Keep in mind that she could simply not accept the phone call or call them back, which I do remind her of whenever it happens, but she accepts anyway, only to complain later, which reinforces my belief that she loves complaining; the feeling that she knows better than you. I believe this to be the closest the woman has ever come to actual pleasure as I can sometimes see her eyes glaze over with delight when it happens, no matter how hard she tries to hide her enjoyment in ridicule.

“Why do people always call when I’m watching Dateline? Don’t they know any better?” she’ll ask.

One day, being sick of hearing that question and never answering, I broke the cycle of selective silence and answered back, “No, Auntie, I don’t think they do. Have you ever told them not to call you during Wheel of Fortune?”

“Well no.” She replied.

“Then how the Hell do you expect them to know?”

There’s no way she could have an actual answer to that question, I thought. There’s just no way.

“… they just should.” Well, there you have it. There’s your answer Raz… they just should. Just like we should just know things about her house and her routine and likes and needs without her telling us and understand why she’s upset with us when we don’t follow her unspoken plans. People should just know things, like what happens when you combine Mercury and Chlorine, or what time the Winnipeg Local makes it’s last stop, or how far up your ass is too far to shove that stick.

As for Melanie’s friend Sarah, when she left, she said her goodbyes to Eleanor and Eleanor returned the gesture with a smile, telling her to “comeback anytime.” I later returned home to Mel after a long day of filming in small spaces filled with July heat and asked her how her day was; everything was fine. I then asked Auntie how her day was.

“Oh just fine, I suppose. Melanie had a friend come by… she stayed too long.” She said. This phrase now haunts my dreams, but who knows, maybe that’s how Earth feels about Eleanor. Then again, stones do have their place in the Earth, usually best kept under 6 feet of dirt.

Bi-Polar Deception Fish


Eleanor Brophy has turned me into a liar. About once a week, during a very specific meal request, Eleanor will sometimes say “I don’t mean to be so fussy.”

Usually I ignore it, but one particular day, oh, I don’t know, let’s say… today, I replied back with “Yes you do.”

I was expecting her to be insulted, as my intent at this point was to actually insult, as she often, unknowingly, insults myself and Melanie. She’ll make a comment about breakfast or lunch not being made fast enough and tell us to do something we’ve already done or something that we are currently doing in front of her while uttering something negative under her breath. Rather than be insulted, however, she laughed, as if I was making a joke. My intended effect having been negated, I just left it alone.

But she does mean to be so fussy. As we’ve pointed out before, she’s very particular in everything she does and as her dementia and senility sets in, she’s losing more of her memory and control over her temper. Eleanor hates something at first and then likes it later. Or she likes it at first and then hates it later. There is no way to know if this is senility or dementia for sure, but again, the family informs me that she has always been this way. Recently, we went to Trader Joe’s, at her request, and purchased low-sodium premade meals for her; salmon, sole and cod each with delicious sides of rice and beans.

We had made fish for her before, which we purchased from the monger at Stop and Shop, then froze it in the freezer and thawed it as we needed it, you know, like most people. She really enjoyed the Salmon we made for her last month. The Trader Joe’s Salmon meal, however, she said she did not. I believe the reason she did not is because she watched me put it into the microwave in it’s cardboard packaging to heat up. When the meal was heated, I gave it to her with her 5 P.M. meds and tea, and left the room. When I re-entered, she told me she “hated, hated it” never wanting it again. For some reason, I simply didn’t believe her.

Eleanor only trusts two people, and I’m not one of them. One is her “handyman,” and the other person Eleanor trusts is Eleanor. A few weeks ago, we had run low on, not out of, toilet paper in the bathroom. She made sure to tell this to me in the most urgent of manners. Upon inspection, the roll was exactly half gone. We usually keep a spare roll in the bathroom cabinet, but that would soon become the primary roll we would be using. She wanted me to go to the store and get some, but I had reminded her that we went shopping the day before and during that trip we had purchased a lot of toilet paper. She asked if I was sure, and I replied that I was. She asked me three or four more times before she had me go into the basement to bring up the package of toilet paper for her to see with her own eyes.

I looked straight into those old eyes, one working, one not, and asked, “Are you calling me a liar? Because what you’re saying right now means you don’t believe me, which means that you’re calling me a liar.”

“I’m not saying you’re a liar, I just want to see it for myself.”

“Auntie, I’m going to go into that basement because I can’t stand being called a liar, and when I come up, I’m going to come up carrying a big pack of toilet paper. So, I’m going to ask you again, do you believe me when I say that we have toilet paper downstairs?”

“…No. Yes. No… I want to see it.” She said, confused and concerned that she might, possibly, in some horrible way, be wrong about something so infinitesimally small.

“All right.” I said, and went into the basement to get the toilet paper.

“Shit.” I said to myself. I couldn’t find it. “Did we get toilet paper? I swear we did. I know we did… didn’t we? No, it has to be here.”

Looking around the storage room, I still couldn’t find it. “Now she’s never going to believe anything I tell her, not that she does anyway, but this is evidence she’ll use against me in the future. I know it.” I kept thinking.

Ready to admit defeat and tell her I was wrong, I shut off the light in the storage room by pulling the string and saw myself from outside of my body; a sad clown standing under a street light that no one comes to see anymore because he simply isn’t quite what he used to be. The bulb above beams on me, illuminating my big red clown nose and my big red face, making one last flicker before I blend into the darkness.

I took my time walking out of the storage room and back into the main section of the basement where the stairs are. Then, like some kind of dawnbringer angel cutting through the darkness with a knife of sunlight, there it was, the package of toilet paper sitting next to the stairs. It had been out of my view as I first walked down them, but now, able to see on both sides of them, it called to me. I heard a victory song in my head. Trumpets, drums, high toned bells, I think I even jumped a bit, actually jumped with joy. “Ha Ha!” I shouted. “Fuck you, Universe!” I thought to myself. What a stupendous victory this was… for something so small… for an accusation of no importance that would be forgotten about by the accuser by sunrise.

Taking the package, I ran upstairs so fast that I tripped but managed to pick myself up before I fell and just kept right on going, running up those steps like I was an escaped slave heading for the freedom and warm, glowing light of the promised land. I walked right up to her, put the package right in front of her and asked her what she saw.

“Toilet paper.” She said. And I turned right around with the package to put it back in the basement. I had absolutely no interest in relishing in this victory in mediocrity. I didn’t even think about the phrase “I told you so” until the following morning, I just wanted it to be over and done with as I realized I put too much care into something that really didn’t matter and something that any member of her family would have told her to “shut up” about.

I had proven to Eleanor Brophy that I was not a liar. She has since proven me wrong, but thankfully, she doesn’t know it. She may still suspect it, but she doesn’t know it.

When she complained to me that she didn’t like the Trader Joe’s premade meal, which she had specifically asked for, I knew it had to be related to her mood. She was in her normal, infantile “blah blah blah everything sucks but me” mood before she sat down to dinner. It must have carried over. It must have.

“Okay,” I told her, “you don’t have to eat it again.”

“Don’t make it again.”

“I won’t.” I replied.

But I would make it again, I just wouldn’t tell her. I had decided that she needed to be proven wrong. That she needed to know that she was wrong about something she was so adamant about. She and Melanie recently had an argument, which was the first time I had ever seen Mel yell. It was over batteries. When we had moved in, we needed room in the refrigerator so we took out all of the batteries on the bottom shelf. Weeks later she wanted two AA Batteries for her 50 year old calculator, and yes, it’s broken (the 2 key is stuck, so 2 becomes 22), and no, she doesn’t want another one. She had started to yell at me that we didn’t have any right to move anything and she wanted them in the refrigerator. As usual, I calmly replied that what she was talking about was an old wives tale and she came back with a comment about how when people come over they’ll need to know where the batteries are and they’ll look in the fridge for them. I simply had to reply to that; “Why would someone come here and look for batteries? You barely even have any visitors” I calmly pointed out, not wanting to raise her blood pressure.

Really, who was she expecting? Apocalypse survivors? Tin soldiers? Walking Flashlights coming by for their weekly spot of tea? Who?

“I want them there.” She screamed at me.

Mel had heard this from the bedroom and flew out of there like a bat out of Hell. “What is your problem?!” She yelled at Auntie, and preceded to list every insanity she had asked of us since we’ve been here with such speed and precision that it was all a blur because I was in shock seeing Mel yell like that; yell at all really. They yelled at each other and had their first, and to date, only argument. Mel had stormed out and Auntie couldn’t understand how she could be the cause of such stress. She really couldn’t, it was just beyond her realm of comprehension.

When I prepared the Trader Joe’s Salmon meal again, I made sure that when she asked what was for dinner, that I answered “Salmon, but not from Trader Joe’s.”

“Good.” She said with both joy and contempt. (It really is a complex, Oscar worthy emotional response.)

I made sure Eleanor could see me “cooking” the fish from her chair in the living room. I had taken the premade Salmon meal earlier in the day and put it in the refrigerator to thaw. When it came time to heat it up, I put it in the pan and asked her how she wanted it cooked. “I want it done.” She said.

I nodded and then turned my body to block her view of the action in the kitchen. “How deliciously devious” I thought; pun intended. I took the fish and rice from the cold pan, put it on a plate and put the plate into the microwave. When it was done, I called Eleanor for her meal and 5 P.M. meds. She eagerly sat at the table and reached for her tea before the fish. I stood at the kitchen sink, washing dishes and the pan, to drive the deception home just a little bit more, but I watched her eat it out of the corner of my eye. When I was finished I turned to her and asked, “How is it?”

“Wonderful.” She said. “A lovely dinner.”

“I knew it.” I thought, but what actually left my mouth was “Good, glad you like it.” …and that was it. No gloating. No “I told you so.” Not even a subtle “Surprise, you wrinkly old tyrant! It’s the same exact meal you hated last week!” Nothing. After she told me how much she liked it, I realized that any attempt to prove her wrong would only be forgotten. Any evidence lost. Victory was futile. Even the Borg would be proud of her hubris.

I was right, she didn’t know what she liked or hated anymore. I was right and it felt good. But what was the cost? I’m a liar now. I’m not some high moral crusader like Batman or Superman- I would have to kill to stop the same criminals from killing over and over; I would have to lie to live in this house, I would have to lie to keep my sanity and to keep Eleanor’s growing insanity at bay. I was given some perspective though, when Mel and I told her mother, Sue, about our “plan.” “So? Who cares?” She said. “Give her whatever she wants.